LetLiamLive

Quoted post

Vivian

#28 For the English-Speakers...

2013-06-14 04:22

Liam's family: N'hésitez pas d'utiliser/modifier à votre besoin SVP ... Please feel free to use/edit as necessary!

Liam has SMA - Spinal Muscular Astropy - ISIS Pharmaceuticals has an experimental drug called SMNRx that can save his life! The family is using this petition to pressure ISIS into allowing them to have the three experimental doses of SMNRx for Liam - the sooner the better as it is imperative that he be treated early on. Special authorization for this treatment has been granted to the family through Health Canada and the SAP program ( http://www.hc-sc.gc.ca/dhp-mps/acces/drugs-drogues/sapfs_pasfd_2002-eng.php ) - HOWEVER - ISIS has not accepted the authorization! This petition is asking ISIS to PLEASE ACCEPT for Liam to receive this very important medication ASAP!

Replies

Yan Défossés
The author of this petition

#30 Thank you!

2013-06-15 02:13:40

#28: Vivian - For the English-Speakers...