LetLiamLive
Our little Liam has SMA - Spinal Muscular Astropy - ISIS Pharmaceuticals has an experimental drug called SMNRx that can save his life! We using this petition to pressure ISIS into allowing them to have the three experimental doses of SMNRx for Liam - the sooner the better as it is imperative that he be treated early on. Special authorization for this treatment has been granted to the family through Health Canada and the SAP program. HOWEVER - ISIS has not accepted the authorization! This petition is asking ISIS to PLEASE ACCEPT for Liam to receive this very important medication ASAP!
Notre petit Liam est atteint d'Amyotrophie Spinale, une maladie génétique dégénérative qui lui donne une espérance de vie de deux ans. La pharmaceutique Isis expérimente un composé prometteur appelé SMNRX, mais refuse de nous le fournir malgré une autorisation spécial octroyé par Santé Canada et son programme PAS!. Cette pétition est un outil pour amener Isis à revoir sa position. S'il vous plaît ISIS, accepter de fournir maintenant à Liam les trois doses expérimentale de SMNRX. Le miracle est encore possible, vous savez ISIS qu'avec l'Amyotrophie Spinale le plus tôt possible est le mieux, en plus de sauver une vie, vous pourriez éviter à Liam des handicaps sévères.
Yan Défossés Contact the author of the petition
Announcement from the administrator of this websiteWe have closed this petition and we have removed signatories' personal information.European Union's General Data Protection Regulation (GDPR) requires a legitimate reason for storing personal information and that the information be stored for the shortest time possible. |
Log in to manage your petition. |
Investigation and Prosecution of Those Individuals Responsible for Crimes Against Humanity
Petition to let Pop play Wemby against Portland on Friday 12/29
Including Antisemitism Awareness Training in Freshman Orientation
Is there something you want to change?
Change doesn't happen by staying silent. The author of this petition stood up and took action. Will you do the same? Start a social movement by creating a petition.
Start a petition of your ownOther petitions you might be interested in
Stop child predator from teaching children
454 Created: 2024-04-19
Time period | All countries | United States |
---|---|---|
All time | 454 | 452 |
30 days | 454 | 452 |
Save Missouri's Wild Turkeys! Reverse All Day Hunting Back to 1:00 P.M. Close!
159 Created: 2024-03-26
Time period | All countries | United States |
---|---|---|
All time | 159 | 159 |
30 days | 159 | 159 |
SAVING/PRESERVING THE 1925 LANCASTER, WI HIGH SCHOOL BUILDING
94 Created: 2024-04-02
Time period | All countries | United States |
---|---|---|
All time | 94 | 94 |
30 days | 94 | 94 |
Winston Churchill High School
85 Created: 2024-04-10
Time period | All countries | United States |
---|---|---|
All time | 85 | 85 |
30 days | 85 | 85 |
SDSCPA Bus Campaign
79 Created: 2024-04-15
Time period | All countries | United States |
---|---|---|
All time | 79 | 78 |
30 days | 79 | 78 |
Demand a satisfactory response from CertiK
7556 Created: 2024-03-27
Time period | All countries | United States |
---|---|---|
All time | 7556 | 51 |
30 days | 7555 | 51 |
Support the renewal of the Stone High Soccer coaches
227 Created: 2024-03-15
Time period | All countries | United States |
---|---|---|
All time | 227 | 227 |
30 days | 49 | 49 |
Mac McClung NBA Contract
43 Created: 2024-03-24
Time period | All countries | United States |
---|---|---|
All time | 43 | 41 |
30 days | 43 | 41 |
Utah took my kids illegally help me get them back!!!
34 Created: 2024-04-07
Time period | All countries | United States |
---|---|---|
All time | 34 | 34 |
30 days | 34 | 34 |
Justice For Kyra Blackburn
30 Created: 2024-03-21
Time period | All countries | United States |
---|---|---|
All time | 30 | 30 |
30 days | 30 | 30 |
فعال سیاسی بیژن مرادی در خطر دیپورت به ایران توسط دولت ترکیه است
450 Created: 2024-03-24
Time period | All countries | United States |
---|---|---|
All time | 450 | 25 |
30 days | 450 | 25 |
A polite request to Elon Musk - please uncensor @LucyHunterB
1011 Created: 2024-03-28
Time period | All countries | United States |
---|---|---|
All time | 1011 | 19 |
30 days | 1010 | 19 |
Stopp steinbruddet i Bremanger! // Stop the building of a quarry in Bremanger, Norway!
5169 Created: 2024-02-07
Time period | All countries | United States |
---|---|---|
All time | 5169 | 421 |
30 days | 219 | 18 |
Facilities Concerns at Leonard R. Flynn Elementary School
16 Created: 2024-04-08
Time period | All countries | United States |
---|---|---|
All time | 16 | 16 |
30 days | 16 | 16 |
STOP SUNNY FROM GOING TO MEXICO
14 Created: 2024-03-27
Time period | All countries | United States |
---|---|---|
All time | 14 | 14 |
30 days | 14 | 14 |
global popular petition, submit to the International Court of Justice in THE HAGE, against B.NATANYAHOU AND JOE BIDEN
37 Created: 2024-04-04
Time period | All countries | United States |
---|---|---|
All time | 37 | 11 |
30 days | 37 | 11 |
Change Lawton's I-4 Zoning Ordinance Verbiage
64 Created: 2024-03-14
Time period | All countries | United States |
---|---|---|
All time | 64 | 63 |
30 days | 10 | 10 |
Restore Pioneer Jr/Sr Sunday Graduation School year 24/25
8 Created: 2024-04-01
Time period | All countries | United States |
---|---|---|
All time | 8 | 8 |
30 days | 8 | 8 |
Traffic Circle urgently needed at Vryheid Engen Junction intersection.
254 Created: 2024-04-10
Time period | All countries | United States |
---|---|---|
All time | 254 | 7 |
30 days | 254 | 7 |
Petition to allow Zach back to MVS
7 Created: 2024-03-30
Time period | All countries | United States |
---|---|---|
All time | 7 | 7 |
30 days | 7 | 7 |