Sickle Cell Warriors: Taking Our Stand!

Comments

#4

I'm a mother of four children that suffer from sickle cell disease

(Arlington, 2017-03-08)

#5

This is so true ! I'm a victim of this statement . I suffer with SCD everyday & im only 18!

(Sulphur springs Tx, 2017-03-08)

#6

I am signing because as an individual living with sickle cell disease, I no longer want to live in fear of being mistreated while seeking care in the Emergency departments.

(Sandy Springs, 2017-03-08)

#7

I have SCD myself and I know how hard is to even get help at times. I'm tired of us being victimize and not treated like human beings because we are a little different.

(Marianna, 2017-03-08)

#8

I'm signing because sickle cell patients must be treated by the medical staff with dignity and respect as any other patients. They should not be red flaged and dismissed as addicts seeking drugs, but as a patient in excruciating painful crisis who needs medical attention and not insults.

(Miami, 2017-03-08)

#13

I'm signing because I have a son with Sickle Cell Disease. One Dr told him that he went to ED looking for narcotics. One nurse told me one time that he was not in a critical condition while we wait on ED. My son is still a minor so I have to advocate and defend his right. Even when he do the transition to the adult life I will keep advocating and defending his rights.

(Leesburg , 2017-03-08)

#17

I am signing because my son has been labeled a drug seeker when he has gone to the ER during a Sickle Cell crisis. Sickle Cell patients need professionals who care and are not judgemental because of their lack of knowledge.

(Orange , 2017-03-08)

#18

#Drs&nursespleaseREAD

For Sickle Cell Opioids Under Scope and Audience #46 CDC says refer to NIH 2014 Sickle Cell guidelines

CDC Guideline for Prescribing Opioids for Chronic Pain — United States, 2016

http://www.cdc.gov/mmwr/volumes/65/rr/rr6501e1.htm

"In addition, given the challenges of managing the painful complications of sickle cell disease, readers are referred to the NIH National Heart, Lung, and Blood Institute’s Evidence Based Management of Sickle Cell Disease Expert Panel Report for management of sickle cell disease (46)."

http://www.nhlbi.nih.gov/health-pro/guidelines/sickle-cell-disease-guidelines/

and

#Drs&nursesjust4u

Did you know that The American Society of Hematology (ASH) created a Pocket Guide app for you to put on your cell phone that can help you with treating sickles cell disease!

http://www.hematology.org/Clinicians/Guidelines-Quality/Quick-Reference.aspx

(Los Angeles, 2017-03-08)

#19

A close friend has 3 beautiful kids living with the evil of sickle sell.

(Ft. Myers, 2017-03-08)

#23

I support Sickle Cell Awareness!

(Byram , 2017-03-08)

#24

I have sickle cell and has been discriminated on and treated unjustly.

(Miami , 2017-03-08)

#26

I'm signing because I'm a sickle cell patient and I'm tired of every single time that we're sick and have to go to the er we're either refused treatment or called all kind of names and it's time for a change.

(Columbus, 2017-03-08)

#30

People I love very much have sickle cell and I know what an awful thing it is!

(fort myers, 2017-03-08)

#31

I've been treated poorly numerous amount of times at different hospitals and I want this to stop.

(Chicago, 2017-03-08)

#32

Both of my kids have sickle cell and they deserve to get the best care available.

(Colorado Springs, 2017-03-08)

#34

I'm signing because I am a Sickle Cell warrior, and I have been the victim of discrimination on several occasions.

(Goldsboro , 2017-03-08)

#35

I have been discrimated against.

(Jersey City , 2017-03-08)

#36

My daughter she is Italian and Greek and has sicklebeta thal 0 and she comes across a lot of people asking her how does she have SCD because she is white !!!! It's a genetic disease not a race one

(Phila, 2017-03-08)

#37

My granddaughter is a sickle cell survivor

(Raleigh , 2017-03-08)

#39

The discrimination against Sickle Cell patients is a huge problem in the hospitals. I have Sickle Cell myself and have been treated differently and/or unfairly because of it. It's time a change has been made!!

(Milwaukee, 2017-03-08)

#45

Support!!

(Baltimore , 2017-03-08)

#46

I am signing because two of my children my self have Sickle Cell and Thalassma minor.

(Glen Burnie, 2017-03-08)

#47

I'm signing because enough is enough!!!

(Conyers , 2017-03-08)

#48

I have sickle cell. The last time I went to the ED they would not treat me because I just left my doctors appointment. My doctor was the one who sent me to the ED, but they still would not treat me.

(Kansas City, 2017-03-09)

#49

Im a sickle cell warrior

(Little Rock , 2017-03-09)

#50

I have Sickle Cell and I think there needs to be more of a focus on the disease. There's too many kids and young people dying from this for it to be ignored.

(Slidell, La., 2017-03-09)

#51

I have Sickle Cell & have experienced being treated like a drug seeker at times.

(Columbus, 2017-03-09)

#52

I have a loved who survives with sickle cell anemia every single day. I am signing this petition to fight for ethical and just healthcare/treatment for my cousin and all other champions who face sickness head-on every single day. ❤️

(Bridgeport, 2017-03-09)

#53

I have sickle cell and know the struggle with getting good and quality care without dealing with discrimination

(Milwaukee , 2017-03-09)

#54

I have sickle cell and am white hispanic. Usually ER doesn't believe me when I go in with crisis and often have to wait until my doctor calls them to get treatment.

(New York City , 2017-03-09)

#55

I am signing because I have not only seen but heard from others, the horrible experiences encountered by SCD patients in hospitals.

(Jos, 2017-03-09)

#56

I care!!!

(Atlanta, 2017-03-09)

#59

I'm signing this petition for my son who suffers from Sickle Cell

(Grayslake, 2017-03-09)

#61

Family living with Sickle cell

(Seattle, 2017-03-10)

#62

I'm a #SickleCellWarrior & #SickleCellDiva & I know what it feels like to be mistreated in the hospital or emergency room!

(Chicago , 2017-03-10)

#64

I have sickle cell.

(Atlanta, GA, 2017-03-10)

#68

I'm tired of the racism, discrimination, disrespect, the unfair, different treatment of Sickle Cell patients. I have seen patients sent home very sick, then called a drug seeker if they have to return. Every Sickle Cell aren't drug addicts or drug seekers. WE HAVE the same pain as cancer patients but treated like junkies or trash. Something must be done and one of these petitions are going to have to be taken seriously.

(Detroit, 2017-03-11)

#69

Im signing because I have several family members with sickle cell.

(Gulf breeze, 2017-03-11)

#70

Tired of the treatment that the sicklers receive. I've noticed it more over the past few years when I'm at the doctor with my daughter especially now that she's older. I'm tired of them socializing them as drug seekers which that's in their opinion then to refuse proper care for them & I have so much more to say but I'll stop there.

(Chicago, 2017-03-11)

#72

I am signing in because i am a sickle cell,i am also sickle cell cell councelor.

(Lagos, 2017-03-11)

#73

I Live With Sickle Cell Everyday!

(Chicago , 2017-03-11)

#75

My son and millions of others need help.
I have lost a family member and friend to SS.

(Plainfield , 2017-03-11)

#76

My only child passed away in 2014 and I saw first hand how she was treated in Emergency Rooms. It was ridiculous. This should never happen!

(Cedarhursr, 2017-03-11)

#78

I have SICKLE CELL ANEMIA

(Kingsland, 2017-03-11)

#79

Sickle Cell has effected my ones.

(Baltimore, 2017-03-11)

#80

I suffer from SS Disease and face discrimination and lack of proper care from hospitals and Drs, nurses...

(Lawrenceville. Georgia, 2017-03-11)

#91

I also have Sickle Cell Anemia

(Huntington , 2017-03-11)

#95

My son has been racially profiled and receive lack of empathy, respect and disparity

(Charlotte , 2017-03-11)

#96

I am 39 years old with Sickle Cell SS and I have resigned myself that I will most likely die at home. Due to the absolute disregard for my health and mental and emotional safety by the medical staff I have come into contact with in the emergency and the floors. The way that we are treated and are made to feel can be called nothing else but outright abuse. Pediatricians who treat us when we are young, try to hold onto US as patients for as long as they can because they know the fate that awaits us. Hospitals are places that are supposed to be built and run on science. Yet when it comes to treating the sickle cell community opinions, fear, and blanket prejudice rule the day costing many of us our lives. I should.not fear medical staff more than I fear my disease.

(New York , 2017-03-12)

#97

People with Sickle cell should not have to fight to get pain relief just because they are having a Sickle crisis and not at their home ED

(Chagrin Falls, 2017-03-12)

#99

I know first hand how the ER discriminate.

(Water Valley, 2017-03-12)

#101

I am a tired Sickle Cell patient. I'm tired of receiving discrimination n mistreatment when I come to the ED or have to be admitted into the hospital...

(West Lafayette , 2017-03-12)

#102

I'm a 45 year old woman with sickle cell disease and I have personally been mis-treated by hospital staff and the emergency room staff. I've been judged for being in pain and asking for pain medication to treat my illness. It's about time something is being done. I wasn't raised knowing anyone with sickle cell. Yet, now that I'm older and have met others with sickle cell who shared with me that they too have had similar experiences as the ones I have. In fact, I believe I haven't met any other person with sickle cell who hasn't been discriminated against. It's time that those who are doing this be held accountable. There has to be some policing done in the hospital to fight against this I'll treatment!!!

(ELMONT , 2017-03-12)

#103

This cause is extremely im0ortant to me for the. Advancement of treatment with sickle cell patient.

(Lancaster, 2017-03-13)

#104

I have Sickle Cell Anemia!

(Flint, 2017-03-13)

#105

This is SO important! I have Sickle Cell Anemia and I personally endure discrimination in hospitals frequently.

(Cerrt, 2017-03-13)

#106

I know the struggle & support the cause

(Ozark, 2017-03-13)

#107

I am a person with Sickle Cell Disease and I deserve to be treated with respect and dignity when I am in crisis. Not as a drug seeker! My pain is no less than a person with cancer. My pain is no less than a person having a heart attack. My pain is no less than a woman giving birth. My pain is real and it should not be treated as anything less!

(Knoxville , 2017-03-13)

#109

Because, Dominique is my daughter

(Van Nuys , 2017-03-13)

#114

I have seen the effects of sickle cel, first hand.

(New York, 2017-03-14)

#117

All patients deserve appropriate treatment.

(Chapel Hill, NC , 2017-03-15)

#120

I have family members with SC and want to see them treated fairly.

(Los Angeles, 2017-03-15)

#121

I'm signing because my best friends son suffers, and the entire family as a result suffers, from SCD. Things can and should change to make the lives of SCD patients and their families less perilous and more just. The time is now!

(Jurupa Valley, 2017-03-15)

#122

Our lives matter too

(Kingston Upon Thames , 2017-03-15)

#123

Because SCD IS NOT A JOKE DISORDER AS THEY TRY TO MAKE OUT TO BE

(London, 2017-03-15)

#133

I have Sickle cell and tired of unique fair treatment

( Columbia, 2017-03-16)

#138

I am a warrior! It's time that we #TakeOurStand!

(sanford, 2017-03-17)

#143

I'm signing because I have Sickle Cell myself & experience horrible things in emergency rooms etc. I'd like to see something done for my community because we matter to just like everyone else. I'm tired of the way we are treated & more needs to be done about this because it is no laughing matter, it's serious & it should be treated as such & we should be taken seriously & be treated fairly & be treated with respect. Enough is enough & we need to come together & speak up because no one is going to do it for us. We are stronger together than we are apart, we are warriors & fight a battle daily & there has never been a battle fought alone by one person, it takes teamwork. There are so many reasons as to why I'm signing this Statement of Action but these are just some of my reasons.

(Rohnert Park, 2017-03-18)

#144

Effective pain management is crucial to anyone who wants to live a productive life. The dangers of someone self medicating are too high for anyone with a conscience to leave it to chance.

(Belfast, 2017-03-18)

#145

my girlfriend is a sickle cell worrior.

(Bronx , 2017-03-18)

#146

My dear cousin, Tiffany, is one of the bravest people I know and she loves fiercely. I sign this to support her.

(Stafford, 2017-03-18)

#153

I've experienced this nightmare too often We are labeled. We are refused treatment. We are treated with cancer drugs but can't get the same response as someone with cancer.
#HOSPITALS=PROFITS/PATIENTS. (profits over patients)

(Yonkers, 2017-03-23)

#156

I'm a warrior and im tired of the pain and humiliation

(Strongsville, 2017-03-25)

#159

My daughter has sickle cell and at a recent trip to the ER, the Doctor told her she believe she was having a crisis just leg pain!! This has to stop!!!

(Fairview Heights, 2017-03-27)

#160

I'm signing because of my neice Mariah Adams and the injustices that she has had to endure with Sickle Cell. Our family will not keep silent until hospitals/clinics views this disease just as important as cancer, MS etc and that they receive the SAME opportunities and many many more resources than are available now. This disease mostly effects the Africian-American community but it is not a MINORITY only disease!!

(St. Louis, 2017-03-28)

#161

I'm signing because my other half has SCD and is treated like he is a drug addict in the hospital. They treat him horrible and I won't stand for it!! Things need to change!!

(Ledyard, 2017-03-30)

#162

I'm signing because I personally identify with everything that this stand for! I get mistreated, overlooked, rude and judgemental comments and it's insulting!

(Fort Myers, 2017-03-31)

#163

I am so tired of losing people!

(Douglasville, 2017-03-31)

#165

I am a sickle cell warrior

(Dayton, 2017-03-31)

#166

I believe in equality treatment for all!

(Miami, 2017-03-31)

#167

I have sickle cell disease and have experienced unjust treatment. This needs to end!!!

(York, 2017-03-31)

#168

#SickleLife365

(Savannah, 2017-03-31)

#169

Because I have been in the position as a mother of a sickle cell warrior who is now 16 and has previously treated like...it couldn't possibly be that bad! I mentioned to nurse my daughter appeared to breathing "funny" and when she breathes like that it's usually a sign of an acute chest syndrome. She mocked me to the other nurses because "she never heard of that". The doctor ordered an xray on a portable xray, when the doctor viewed it, she said "mom was right" we were then rushed to a trauma center. My daughter was in PICU for 5 days after being in the other hospital for 6 days. This is why I am singing!!!!

(Sarasota, 2017-03-31)

#170

I support the cause, let a voice be given to sickle cell patients all over because you can't understand the extent of pain we are in

(Lagos, 2017-04-01)

#174

I'm signing because I'm a sickle cell warrior

(Paramount, 2017-04-08)

#177

I'm signing this petition because I have witness first hand the mistreatment and disrespect shown towards SCD by hospital staff the medical professionals by labeling Sickle cell disease patients as drug addicts.

(Miami, 2017-04-15)

#181

I have hemoglobin sickle disease and I agree

(71770, 2017-04-29)

#182

I too am a Sickle Cell Warrior and have witnessed first hand stigmas, been mistreated, and very ill trained and professional staff are in most hospitals at the point of entry being the ERs by Dr.s and nurses, during hospitalization by hospitalist, and it need to be addressed.

(Leesburg , 2017-04-30)

#184

I'm signing because I'm getting tired if being discriminated against for something I was born with and can't control. I dont believe that its fair to Have to deal with doctors discriminating and not believing nor understanding what we go through. People with ms or cancer do not have doctors not understanding or thinking that they're faking their pain so WHY SHOULD SICKLECELL PATIENTS HAVE TO DEAL WITH THAT?!

(St.Louis, 2017-05-09)

#185

I've be a victim of discrimination twice by the same doctor at a hospital I've been going to since I was a kid. I get treated great by everyone but her I've been lied on numerous times by her been called a drug addict to my face and this was also told to my family who came to see what was going on. This story is deeper and longer but this is the short version

(Vero Beach , 2017-05-09)

#186

I feel this is needed, a must!

(Fort Lee, 2017-05-10)

#187

I have been subjected to less than favorable treatment in hospital due to unwillingness to provide adequate care.

(Pine bluff, 2017-05-10)

#189

My daughter fights this disease every day!!!!

(Chicago, 2017-05-14)

#190

My one year old son, my cousin, and two uncles have sickle cell SS

(henrico, 2017-05-14)

#191

My son & daughter both have scd & have received less than adequate care in their in of need.

(Euclid, 2017-05-14)

#192

I've received and witnessed discriminatory treatment and malpractice in hospitals that I was employed by. I've done SCD advocacy at hospitals, in support groups, and at the local, state and federal government levels for 30 years. I'm very tired of seeing some of the same issues continuing for SCD patients in America. I feel litigation has become the last resort to see real change to eliminate at least some of this abuse and malpractice.

(Mayfield Heights, 2017-05-18)

#193

My son passed away front sickle cell anemia

(Euclid , 2017-05-19)

#194

I have witnessed and been a victim of discrimination

(Bronx, 2017-05-28)

#195

I have been a victim of being treated like this.
It must stop.

(Memphis, 2017-06-11)

#196

I am a parent of a warrior but also a Nurse and I have seen the injustices first hand

(Southfield, 2017-06-18)

#197

Because I too have sickle cell and am an advocate for other patients. We suffer too long unnecessarily because Drs and Nurses do not listen to patients out of fear of liability or arrogance.

(Los Angeles, 2017-06-19)

#199

I'm signing bcuz I have sickle cell and I've lost my cousin my 2 best friends and many warriors its scares me that I may be next due to negligence at these hospitals and we have to do something

(Canoga park, 2017-06-21)

#200

I'm a Sickle Cell Patient who has dealt with ignorant doctors who sent me home while I while suffering from a pain level of a 9 because " I really don't know how to treat SCA. "I also dealt with insensitivity from a doctor who discharged me from the hospital with a infection, so severe that my entire body was visibly swollen & pain so unbearable I couldn't stop crying or screaming. After a day of being home I had to return to the ER & was admitted under the care if the same doctor. Who upon seeing me again stood over my bed & stated "We're not giving you any pain medicine" He never apologized for sending me home with an infection that could have ended my life & only thought if me a someone who was seeking drugs. These types of doctors fail to see us a humans & never realize that the greatest medicines are compassion & kindness. They completely fail to realize how much harm they are inflecting on their patient by causing them stress during the hospital visit as well as longtime stress because they no longer see a hospital as a safe place to come to whole in desperate need. So many of us stay home & suffer in silence for lack of a caring & safe place to access help.

(Leawood, 2017-06-23)