Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco.
Contact the author of the petition
This discussion topic has been automatically created of petition Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco..
Guest |
#782016-11-16 18:32I have a cousin with CF. It means a lot to me that people with CF get the care and recognition they deserve. |
Guest |
#792016-11-16 21:18Every child should have the best treatment they can get to help them with their illness. |
Guest |
#822016-11-17 21:53Everyone deserves the right to live the healthiest they can . No matter what the cost. |
Guest |
#832016-11-18 11:39I signed this because I believe that the children who are born with CF need to be given Kalydeco to help them. |
Guest |
#852016-11-19 19:38I signed this petition because my friend has 2 children with CF...one is over 5 and on the Kalydeco and is doing very well on it, but her other little fella is 2 and not on it because if his age.. |
Guest |
#862016-11-19 19:42Because kids like Chloe deserve to have quality of life more than politicians deserve a raise in their salaries. |
Guest |
#882016-11-20 14:43After meeting this wonderful little girl, I'd want her to have access to the medication she needs to live a happy, fulfilled life! Being a nurse, seeing such wonderful people not being entitled to the life changing medication they need to like a happy comfortable life because of the cost saddens me! I hope this petition is the beginning of something that will change this awful attitude! X |
|
Petitions promoted by other users
PETITION OPPOSING ARROWHEAD AIRPARK IN CASS COUNTY MISSOURI
📜 PETITION TO THE PARLIAMENTARY COMMITTEE ON THE HEALTH CARE COMPLAINTS COMMISSION (HCCC)
Oppose Islamophobia Definition
Petition Against the Installation of a Biodigester at Wilson Rd, Fairfield Township, Madison County, Ohio
Cancel NPC's Car Park Management Contract in GMV West
Keep the Saturday evening jazz concerts at the Roxbury Library
Relocate The Shed
Proclamation for a Restored Republic
Hardworking People Against AB 928
The adoption and ratification of a new calendar for the United Global Trade Organization
Bend to the Beach Road Initiative
Is there something you want to change?
Change doesn't happen by staying silent. The author of this petition stood up and took action. Will you do the same? Start a social movement by creating a petition.
Start a petition of your ownOther petitions you might be interested in
PETITION OPPOSING ARROWHEAD AIRPARK IN CASS COUNTY MISSOURI
348 Created: 2025-04-28
Time period | Number of signatures |
---|---|
All time | 348 |
30 days | 158 |
We, the players, want DISTRAINT 3
407 Created: 2025-07-17
Time period | Number of signatures |
---|---|
All time | 407 |
30 days | 407 |
SAVE THE HISTORICAL FORT GATES FERRY
177 Created: 2025-01-15
Time period | Number of signatures |
---|---|
All time | 177 |
30 days | 29 |
📜 PETITION TO THE PARLIAMENTARY COMMITTEE ON THE HEALTH CARE COMPLAINTS COMMISSION (HCCC)
1427 Created: 2025-07-15
Time period | Number of signatures |
---|---|
All time | 1427 |
30 days | 1427 |
Richard Bong State Recreation Area Class 1 Dog Training Area Requested Change
386 Created: 2025-06-17
Time period | Number of signatures |
---|---|
All time | 386 |
30 days | 21 |
Please indicate your support as a NANDC stakeholder for the reappointment of Jim Childs to the NANDC Board for the open at large position by signing this petition
18 Created: 2025-07-16
Time period | Number of signatures |
---|---|
All time | 18 |
30 days | 18 |
We, the residents of The Richmond Dairy Apartments, demand immediate action from property management and corporate leadership.
16 Created: 2025-07-09
Time period | Number of signatures |
---|---|
All time | 16 |
30 days | 12 |
The Ohio Student Excellence Initiative
11 Created: 2025-08-05
Time period | Number of signatures |
---|---|
All time | 11 |
30 days | 11 |
Bring back "Julie and the Phantoms" for season 2
164 Created: 2025-02-11
Time period | Number of signatures |
---|---|
All time | 164 |
30 days | 28 |
For the maximum effective sentence for Gabriela Sashova and Krasimir Georgiev, and for legislative changes envisaging harsher penalties for crimes committed against animals!
204216 Created: 2025-03-14
Time period | Number of signatures |
---|---|
All time | 204216 |
30 days | 314 |
Bring the Maasverse to Life in Anime Format — Arcane/Dracula-Level Animation for SJM's World
11 Created: 2025-07-19
Time period | Number of signatures |
---|---|
All time | 11 |
30 days | 11 |
YouTube please reinstate EverBlue ASMR YouTube Channel
9 Created: 2025-07-16
Time period | Number of signatures |
---|---|
All time | 9 |
30 days | 9 |
EXTEND PHEV EXEMPTION FOR NY/LIE HOV LANE
6 Created: 2025-07-14
Time period | Number of signatures |
---|---|
All time | 6 |
30 days | 5 |
Bend to the Beach Road Initiative
24 Created: 2025-06-24
Time period | Number of signatures |
---|---|
All time | 24 |
30 days | 3 |
Adaptation of "Robber x Lover" into an Anime Series
203 Created: 2024-04-16
Time period | Number of signatures |
---|---|
All time | 203 |
30 days | 7 |
Petition to Amend Lawton's I-4 Zoning Ordinance Verbiage
149 Created: 2024-03-14
Time period | Number of signatures |
---|---|
All time | 149 |
30 days | 3 |
Proclamation for a Restored Republic
91 Created: 2025-04-26
Time period | Number of signatures |
---|---|
All time | 91 |
30 days | 2 |
Justice For Cwecwe
1173639 Created: 2025-03-27
Time period | Number of signatures |
---|---|
All time | 1173639 |
30 days | 196 |
PETITION FOR SISTER MARY EPHREM TO BECOME SERVANT OF GOD
356 Created: 2022-09-16
Time period | Number of signatures |
---|---|
All time | 356 |
30 days | 2 |
Make Armored Mud Balls a State "Sedimentary Structure"
464 Created: 2021-03-03
Time period | Number of signatures |
---|---|
All time | 464 |
30 days | 2 |