Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco.
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This discussion topic has been automatically created of petition Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco..
Guest |
#522016-11-14 22:56I signed this as my next-door neighbors 3 year old boy has CF and I see the daily worries and concerns they have for the future of their precious son |
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#532016-11-14 23:15A friend has a 13 year old daughter with C.F.. would love to see these drugs made available for them |
Guest |
#542016-11-14 23:40I have seen the improvement ( my grand son)!who has had access to Kalydeco for almost 4 years. He is 19 now and I wish he was able to have this when younger. It makes so much sense to give it to younger children, so preventing the continuing deterioration in lungs and other organs. Please give these children a chance! |
Guest |
#552016-11-14 23:50Stop making people beg, and give Kalydeco. It's a super drug and saves so much other money on various nebuliser machine, drugs to go in the nebs, home iv drugs, extra oral antibiotics, hospital appointments when a child could otherwise be healthy on Kalydeco, save hospital time for other people. It's petty not to give it to the remaining 18. Let them see a normal life. |
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#562016-11-14 23:52I've seen the difference this drug can make to someone with CF........please sign the petition so that Chloe and other children and young adults can get this life changing drug. Thank you. |
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#572016-11-15 00:24 Because every child has a right to adequate medical treatment and I want it to happen |
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#582016-11-15 00:37It's criminal that cf sufferers don't get this medication it transforms their shot lives. My daughter did see passed 16 yrs. no need for that now. |
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#592016-11-15 08:26My granddaughter molly is one of the 18 children that need this drug and they all deserve the chance of it |
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#612016-11-15 10:12For my 2 year old granddaughter I aslo as recommended wrote to my MP who in avery polite long letter containing many excuses they advided this issue is absolutly nothing to do with the goverment at all and they are unable to help or get involved Very disapointing when smokers drug adicts and obese people get medication and surgey with no questions asked and without having to justify the treatment they recieve These people have chosen lifestyles which have caused their ill health children with CF have no choice in their condition but are denied life chaning drugs i find this appauling and unfair |
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#622016-11-15 10:17I have a colleague with a Child with CF aim the same position, he is eligible for Kalydeco but they are having to fight for it as he is under 5! |
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#642016-11-15 11:05Because its typical of this country and government the never pay out funds for what really matters except there own pockets |
Guest |
#652016-11-15 11:40I signed this petition because no one should be denied essential medication that can give them some sort of a better or normal life. As someone with numerous chronic illnesses I understand how important optimum treatment is and what it's like not to be able to live a normal life. If there is medication that can help a person or child nobody should have the right to intervene to prevent it being issued to the patient regardless of age. |
Guest |
#662016-11-15 11:44I signed this petition for all the children who really need this drug for their future health,my little cousin molly strahan who lives in Ireland desperately need this medication so come on people sign this and share as much as possible. Thank you |
Guest |
#712016-11-15 17:08Hope they reach there target get as many people to sign the petition.I have a nephew with cf and hoping and praying that one day they will find a cure |
Guest |
#722016-11-15 18:12This makes such a massive difference to all the children, including my Samuel |
Guest |
#732016-11-15 19:35My grandson 21 months has cf and needs this drug. The louder we shout the more we'll get heard! Goodluck to Chloe & william. |
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